Neurodiversity Affirmative Approach
Valuing Individual Differences
The STAARS study recognises the inherent diversity of human experience and values the unique perspectives of all individuals. We move beyond a deficit-based model of research, viewing individual differences as part of the natural spectrum of human variation, acknowledging both the strengths and challenges of our participants. ​
Recognising Participant Strenghts
By understanding how early emerging characteristics contribute to both strengths and challenges in ADHD and autism, we can gain valuable insights into their development. Our research aims to identify appropriate targets for interventions that leverage existing strengths, promoting positive development and well-being.
Building Trust With Participants
As a longitudinal study, we prioritise building strong and trusting relationships with our participants. We actively seek feedback from families throughout the research process, valuing their insights and recommendations on how to make our research more accessible and relevant to their needs. As our participants reach adolescence, we collaborate with them and their families to identify their priorities for further research to ensure that our study remains relevant to their evolving needs and experiences.
Advocating and Recommending
STAARS scientists are shaping the future of autism research through their contributions to publications. Click here to read a paper outlining a vision for a neurodiversity-affirmative approach to biomedical research, co-authored by STAARS scientists. And click here to read a paper co-authored by the STAARS program lead, emphasising the critical need for ethical considerations in early neurodevelopmental research in autism.
Promoting Respectful Language
We strive to employ person-centered terminology that respects individual preferences and avoids stigmatising labels. This includes prioritizing language that empowers participants, focusing on the individual and their strengths, rather than solely on their diagnosis.
Creating an Accessible Environment
Our study creates an inclusive and accessible research environment for participants and their families. We work closely with families to understand and accommodate individual needs and preferences, making necessary adjustments to the research environment as needed.
Learn more...
Click on the photo below to listen to the STAARS Programme Lead, Emily Jones, discuss in more detail about an affirmative approach to neurodiversity in research.
